The Fight

Marissa Sweat Evans by Marissa Sweat Evans Additional Needs

Marissa Sweat Evans

Marissa Sweat Evans

I am a mother and advocate for my son as well as others with disabilities. My oldest was diagnosis with cerebral palsy, epilepsy and autism.

A lot of families who have children with special needs struggle mentally, emotionally, physically and financially. And people often wonder why.

A lot of times we must fight to get the things we need for our children. And that take away a lot from us.

Things aren’t given to us because we have a child with special needs.

We must go through hoops and hurdles sometimes to get what they need. And a lot of times its just us out there searching for ways even with the resources that are available to us.

People think that because our children qualify for government assistance its not hard for us, but the truth is government assistance isn’t available to everyone and everyone its available to still must fight for certain things.

We still must provide proof that what we ask for is needed for our child.

Being its more than just our child needing things there are often waiting list for things that are available to them such as therapy and waiver programs.

These lists can sometime take months and even years before their available to you. And as parent although you know this you continue to look because you know your child need these things.

In hopes that someway somehow there is another way.

That’s why I don’t mind sharing whatever I know with other families because I know how hard it can be to have fight to get the things your child need.

I share my experiences as well as my knowledge with others. No need for them to stress themselves out by researching the things that I have already.

And the parents I share with always appreciate it.

Parenting kids with special needs is a constant job for us.

We’re not only their parent but were their voice, nurse, advocate and whatever else they need us to be. We fight because its all we need.

We're always in attack mode when it comes to them because were so use to people giving us a hard time.

But more importantly we love them enough not accept no but fight for the things they need.


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