Special Needs Mum: I’m a Fraudster

Sarah Kay by Sarah Kay Additional Needs

Sarah Kay

Sarah Kay

An honest (and hopefully positive!) chat through the rollercoaster journey we have found ourselves on; hopefully to raise awareness of HIE and supp...

I’m a fraudster.

You see I’ve been given a job that I’m not qualified for…and it’s only a matter of time before I’m found out.

I applied for a new job, to become a Mum, in 2014.

It’s something I’ve always wanted to do, but never had the courage to apply before.

I felt a bit nervous about it, but had done my research and thought I could possibly scrape through with the little knowledge I had (OK, I had babysat for a friend on a couple of occasions, but everyone fabricates their CV a little, don’t they?).

Anyway, I don’t know how the mix-up happened, but in 2015, I was given a different job, not the Mum one I was expecting; I was given the role of Special Needs Mum.

I hadn’t seen the advert for this one, and certainly hadn’t applied for it, it just kind of happened.

Now I am nowhere near qualified for this position. I don’t have any medical background - I haven’t even stayed in hospital for more than a day before I got this job, and feel a bit queasy when I watch 24 Hours in A&E on the telly.

I don’t have any physio experience, never heard of portage, clueless about milk and weaning, and didn’t event know that feeding pumps and gastrostomy tubes existed.

I’m not sure how, but I think I have, just, managed to wing my way through 21 months in the job.

I did try to tell a nurse, when we were first in hospital, that I didn’t think I would be any good at this job, in the hope that she’d take it off me and give me the regular Mum role instead.

She didn’t. She told me that I would be fine, that I’d find my way, and would do whatever was best for my little girl.

Looking back, I guess she was right.

I’m no longer daunted by the medical terms that get thrown about during hospital stays; I’m a regular therapist doing stretches and exercises to help ease aching joints and encourage better head control.

A pretty organised admin assistant making sure that we turn up for all the appointments that have to be squeezed in to each week; a dietician, tweaking the volumes and rates of feeds; a nurse and pharmacist who orders and administers all the required meds (several each day); an advocate for our little girl; a play-pal to entertain and have fun with; and I’m a mum.

Just a mum. Turns out it was the job I wanted, it’s the job I love, even if it is harder than I could have ever imagined, with longer hours than I expected, and without any training plan to work towards.

I hope I don’t get found out actually, I can’t see myself doing anything else.

Now, I wonder what the chances of a pay-rise are?!

(If you’ve recently found yourself in a new, unexpected role, then hang on in there, chances are you’re doing great!)

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