Special needs parenting: Finding Resources

Francie Khalaf by Francie Khalaf Additional Needs

Francie Khalaf

Francie Khalaf

I am a wife and mother of two children with cerebral palsy. I believe in making lemonade out of lemons

Special needs parenting: Finding Resources

Have you ever spent time researching something?

Most of us have spent time researching one thing or another.

For some, like my dad, it’s a way to kill time, a relaxing thing to do after a long day, a way to answer those “I wonder” questions.

For us (parents of special needs) it’s an arduous and often frustrating process.

Special needs equipment is so expensive and also hard to find.

I have talked to many parents that adapt their own equipment and “hack” things to help their child.

Why does it have to be this way? It’s frustrating!!

Firefly has given us so many options.

They have given us the Go To Seat that helps Sawyer sit in any seat and even a shopping cart!

We have the Scooot that helps Sawyer scoot around the upstairs as well as provides a wheelchair that he can move on his own eventually.

Don’t even get my started on the endless opportunities of the Splashy seat.

We have used it at beaches, pools, showers, bathtubs and even in the snow! Sawyer has been able to enjoy his sprinkler with his friends outside in the summer.

Now, the biggest question, why did I have to find out about this amazing company through a friend?

Why aren’t more doctors and therapists privy to this company and others like it (if they exist).

I know that many who are reading this are familiar with Firefly, but what if this blog is shared to someone who isn’t familiar?

What if this changes the life of a special needs child like it did ours?

What if, just what if, this blog reaches a parent that is feeling defeated?

I want to make sure you understand that I DO NOT work for the company.

I’m a special needs parent that has tried all the equipment. I am a Firefly user and advocate.

I have every product and look forward to more that come out.

Now, for the most important part: use your community around you.

What I mean by this is USE other special needs parents.

Use the ones in your community and the ones outside of it.

Learn from parents who have been there and share successes or things you have found that has helped.

We are a large but tight knit community, use it.


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